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28/10/2017 02:22:46
Guest I am 79 years old. Had problems with balance months before the TIA. Then a day before I drank 2 bottles of red wine, shared with a friend as a celebration - so most probably I had consumed a bottle in 6 hours time. I didn't get a hang over, I didn't throw up and just felt okay after a night's sleep. The following day, I banged some fence posts and cut 3 fallen trees so I've worked very hard. By 12 noon, I drove up to the house on my ride on mower and when I reached our house, I couldn't get out as my left leg is heavy and I can't unclenched my left hand. Eventually I was okay; I went inside and ate lunch and had a nap. An hour later, I woke with a bad cramp in my leg. Couldn't get to the phone and when I did I dialled 111 but somehow our phone wasn't working. So I decided to phone our neighbour-didn't know their number so I crawled on the floor to find the phone book. I managed to get on a chair but and fell out of it when I stood up to get the phone. Anyway they came and they called the ambulance. On reflection I should have phoned our neighbour after the first symptom with my leg and hand.
03/03/2017 10:02:26
Amy01
Posts
Hello people....

Thanks for sharing your first hand experiences..hope this will help in your research sati
04/12/2016 15:50:22
Vitya6587
Posts
Our heart is a perfect engine but sometimes even perfect thing fails. This article is dedicated to the tips and tricks which help you to cooperate with weak heart, follow the link http://skywritingservice.com/blog/how-to-cope-with-heart-stroke
15/06/2012 18:15:29
lunalite
Posts
I am not from UK as other people are. I am from New York City
15/06/2012 17:54:55
lunalite
Posts
hello,
I had a stroke October 26, 2010 and was in a coma for a month. I had no warning symptoms. I had soup for dinner and then proceeded to vomiit at least 3 times. I took two aspirins and went to bed. My husband tells me the following day, I was crying that I couldn't see and had a terrible headache and couldn't call my doctor. I took two more aspirins and He called my doctor who told him to call 911 and then called 911. I don't remember anything after that till I woke up. I was taken to Einstein and then moved to Montifiore hospital. In that month they put a drain on my brain, gave me a feeding tube, and a tracheodomy. i don't believe I need the feeding tube and the tracheodomy. Now I have a scar forever and not happy about it. I was given "Vicomycin" that created blisters and nearly killed me. Of course I paid for the medicine to save my life but being in a coma I couldn't complain. I have scars on my body from this too. I woke up in December not knowing anything. I was in a bed where I couldn't get out of. I had to pee and poop in bed and wait for someone to come clean me. I remember twice wanting to get out of bed and couldn't and wasn't allowed too. My husband took me to a rehab in January. I hated all the food there. In the hospital I had food that was mushy and crushed. near the end I got real food but I could still taste some. In the Rehab I barely ate anything cause I thought the cook was terrible. It was only when my husband bought me some "popeye's chicken" did I realize it was my taste buds. It was horrible. When I left the rehab I was called by my doctor that I had a urinary tract infection which I believe I got waiting for them to come clean me after going. Many times told by staff that "they were busy and didn't come" I can't imagine what keeps them busy for 4 hours after 1 am in the morning. I know sometimes I would pee 3 or 4 times making my diaper very heavy and wet everything.
When I got home my husband told me I had quit smoking. Since now I was in his mercy, I had to quit but everyday I want a cigarette. I can't taste or eat and I can't smoke. I've learned that there are worse things than dying. If the doctors can't let me die than they shouldn't harrass my husband for a signature and shouldn't scare everyone like they did about me saying I was dying. It's June and still have a taste problem. Nothing is good and have lost my appetite. I can't cook since I can't taste.
I've learned that people don't want the truth. I'm supposed to be grateful that I was saved. My best girlfriend is now dead and buried. A friend of my husbands mother is brain dead and kids are suing the hospital. She came in for a hernia. All in the same hospital and I'm alive with no possiblity I being normal again.
PS: My husband is Indian(Sharma)
22/05/2012 21:05:50
Guest I had a painful inflamed area in my left leg about a month before my stroke, it stayed for a couple weeks and could have been a DVT. I had a replacement R hip several months before and I probably didn't do enough walking post-op. I also had painful shoulders before my stroke which went, but came back about 4 months later.
08/02/2012 13:34:10
Guest Hi everyone!

I wanted to thank everyone who replied to my post. I’m pleased to say I submitted my masters project (Do patients have early warning symptoms before stroke? An exploratory mixed methods evaluation).

In summary, the project found an overall increase in all symptoms and diagnoses documented by GPs in the 3 months before stroke. Neurological symptoms in particular were identified as being important up to 6 months before stroke. These symptoms may have been unrecognised transient ischaemic attacks (TIAs) which, if true, may change the way in which healthcare professionals view the natural history of TIA and the methods by which patients are managed. It appears that the warnings of stroke were often only viewed as important by patients after stroke had occurred. At the time symptoms are experienced, they may be rationalised by patients. Even when patients do attend their GP, symptoms may be misinterpreted by doctors.

If you would like to know more about my findings, please message me. I intend on continuing the investigation as a PhD if I get funding, developing the proposal over the next year. Thanks again for all your help.

Best wishes,

Satinder
31/08/2011 20:52:48
Guest Hi everyone!

I wanted to thank everyone who replied to my post. I’m pleased to say I submitted my masters project (Do patients have early warning symptoms before stroke? An exploratory mixed methods evaluation) a few days ago.

In summary, the project found an overall increase in all symptoms and diagnoses documented by GPs in the 3 months before stroke. Neurological symptoms in particular were identified as being important up to 6 months before stroke. These symptoms may have been unrecognised transient ischaemic attacks (TIAs) which, if true, may change the way in which healthcare professionals view the natural history of TIA and the methods by which patients are managed. It appears that the warnings of stroke were often only viewed as important by patients after stroke had occurred. At the time symptoms are experienced, they may be rationalised by patients. Even when patients do attend their GP, symptoms may be misinterpreted by doctors.

If you would like to know more about my findings, please don’t hesitate to contact me (email s.singh.3@bham.ac.uk). I intend on continuing the investigation as a PhD if I get funding, developing the proposal over the next year. Thanks again for all your help.

Best wishes,

Sati
28/08/2011 19:21:27
Sally
Posts 13
My feet hurt bad for some months before I had a stroke.After the stroke my feet did not hurt anymore.I don't understand and the doctors don't either.
07/08/2011 06:43:21
Guest Walking in the presence of giants here. Cool thikning all around!
28/07/2011 16:05:03
Guest H i John

This is a helpful sight thanks for setting it up.... i had a cerrebelum stroke and made a good recovery, people woudl not know i had a stroke unless i told them... The after effects are just muscle weakness and my sight which is improving less tiered now that i was.... My stroke happened in 2007 and i am making progress everyday mentally and phisically i think having a positive attitude to this debilitating condition and not letting you get down is also a help towards recovery.........

Ellie
17/07/2011 17:41:59
Guest Hi John,

Thanks for your reply and your time setting up this website. It sounds like your history will be very useful for my study. Once I've analysed all the results I'll be sure to get back in touch.

Best wishes,

Sati
edited by admin on 18/07/2011
16/07/2011 17:22:48
admin
Posts 31
Hi, a couple of times before my stroke I had very bad vertigo and could barely stand up, this happened once about 18 months before the stroke (Cerebellar) and once about 2 weeks before the stroke. I now recognise these symptoms as a TIA but didn't think anything at the time. I used to smoke as well (about 20 per day) but I stopped the day I had my stroke. My stroke happened 3 weeks before my 40th birthday in Jan 2000. By the way I setup this website after I left hospital and have run both the website and forum ever since. If you would like the results of your study published on this website just let me know and I'll sort it for you. Just use the contact form on the site. I hope this helps,
Thanks, John D'Arcy
01/07/2011 14:02:51
Satinder
Posts 1
My name is Sati Singh and I am currently engaged in stroke research at the University of Birmingham (UK) as part of my MSc project.

Anecdotally, people who have had a stroke often reflect on the time before their diagnosis and identify particular symptoms which, in retrospect, may have acted as early warning symptoms of a stroke.

One of the areas I am investigating is whether there is any pattern to these early symptoms before the stroke was diagnosed. If there any patterns, these might help people who are at a high risk of stroke being identified and treated earlier and perhaps even prevent strokes from occurring.

I am writing this on this forum to generate ideas about such warning symptoms which people who have had a stroke may have experienced in the year before their stroke occurred.

Your participation in replying to this post is of course entirely voluntary. If you do choose to help then I may use some of your quotations in my study which may be published in journal articles.

All the information I will use for publication will be anonymised, but obviously your posts will remain online in this forum and will be visible by anyone who has access to this website.

I will not be able to remove your posts once they are submitted to the forum, but you may still be able to do so depending on your forum privileges. I would advise that you are familiar with how to remove your posts before you decide to respond to my study.

If you decide that you would like to withdraw your response from my study you can contact me via email before the 1st of August 2011 and I will remove all of your collected information from my database. Whilst you may delete your posts and I may remove them from my database, I do not have control over how anyone else accessing the forum may use or quote your posts.

Only participants over the age of 16 are eligible for the study. Anyone under this age should not respond to the forum post.

Once I have completed the study (anticipated to be August 2011) I will post the results back on the forum for view. If you have any further questions you wish to ask me directly, please feel free to email me at s.singh.3@bham.ac.uk.

Many thanks,

Sati.



Questions:

1. Did you experience any symptoms/problems in the year before your stroke which now seem like they may have warned that your stroke was going to happen?

2. How long before your stroke did these symptoms/problems occur?
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