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Home » Stroke Survivors » Stroke pain medicine question (first post) Messages in this topic - RSS
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06/01/2013 17:24:40
Hi....sooo sorry...I have a question.. Is your pain, in the form of numbness, or a sharp pain?

30/12/2012 12:55:06
Three years ago, I had a massive ischemic stroke on the right side of my brain due to atrial fibrillation. I was 44 years old. I was lucky enough to have TPA administered. when I was admitted to the hospital nothing on the left side of my body worked. I was lucky enough to be able to walk three days after I got out of ICU. After months of occupational and physical therapy I was able to use my left hand, but never recovered fine motor skills of my fingers on my left hand. I've had major depression issues and of authority issues since I left the hospital along with numerous other issues that I'm sure massive stroke survivors send to have.

After 6 to 9 month of leaving the hospital I developed central pain syndrome, which I know is known by different names. My neurologist has had me try different medicines from every class of medicines that are used to treat central pain syndrome.I felt that the medicines either didn't work or the side effects were not worth continuing the medicines. I'm at the point now where I use hydrocodone for pain relief.

the last two medicines that I have tried are Lamictal and Trileptal. I'm convinced that these two medicines have made my pain worse, much worse. My question is, have any of you taken medicines for pain relief for central pain syndrome that have actually made the pain worse.with the level of my pain, it's hard to be objective on what is better or worse but I'm quite convinced line is worse.

The pain is in my left shoulder, left wrist, and fingers on my left hand.
I would appreciate anybody's opinion on this matter because I don't think taking hydrocodone for the rest of my life is the best approach for pain relief.

Thank you, your opinions are appreciated,

C. Johnson
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