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19/05/2018 15:51:16
topic: Stroke Survivor delayed and financially stuck

I am currently staying at the Bowthorpe Care Village following a stroke and I am getting ESA and PIP Benefits and they have stopped my benefits without telling me and I have received no communication to any reason why. I am getting better and I need someone to get me out of the wheelchair as I am ready but there are People who are dealing my progress. Can't the DWP give me 12/20 months to acheive my goal and get out of the wheel chair first. I am prepared to work because I am not like others but I would prefer to get out of the wheel chair first as I am so independent. Besides there are People who are delaying my progress where I am staying which is making angry. I want this urgently sorted but I am stuck to know who to turn. It is typical of People who know me at the time I was very poorly and when I am left to it. All I need is someone with me for me to stand for a long period of a time as sitting down for ages is like a big shock to one's system. Also I feel like I get wrapped in cotton wool and I am 47 and a member of my Family is not helping my situation and if People who fuss should help me get out of the wheelchair and I am ready to walk.
14/05/2018 11:12:09
topic: What does a stroke feel like?

Hello everybody.

I am an assistant editor at Medical News Today and we have recently written an article on what it physically feels like to have a stroke. We would really like to speak with some people who have previously had a stroke so that we can accurately represent this to our readers as best as we can. In the article we cover the physical and emotional impact that a stroke can have and we would be open to any changes that people think could improve the content of the article. The current article can be found here:


I appreciate that this is a very sensitive topic and contributions could be anonymous if preferred. If anybody would be interested in speaking with me then please feel free to either add your contributions to this thread or email me at priches@healthline.com. Nothing will be published before I have spoken with you and any emails sent in confidentiality will be kept that way.

Many thanks,

Phil Riches
03/05/2018 22:16:44
topic: young stroke survivour looking for motivation

Hello all,

I am 27 years old and suffered a severe stroke 6 months ago i currently have left sided paralysis and I have really thrown everything i've got into trying to recover my arm and hand. I keep getting told that the arm and hand take longer than the leg to come and i'm looking to talk to someone who has recovered from a stroke just to remind me that it is possible to re-gain functionality, what are the common problems that people have overcome when getting back into the 'real world'?
28/04/2018 17:22:52
topic: Tingling Sensation In Arms and Legs When Touched

My wife had an ischemic stroke on28th December last.She still suffers from extreme fatigue and 'wooly' head. These are normal and to be expected but what I cannot find out about is the tingling (like electric shocks she says) in her arms and legs she experiences when touched even lightly.
Anybody else suffered/suffering this?
18/04/2018 19:37:02
topic: civil rights

I had a severe stroke Jan 10, 1981. I was 16. Over the years, I have improved but some things like spasticity still affect me. I got to thinking on rules that the State Park put into place to stop children from riding on the bicycle trail, may be violating my civil rights too. See, today I have bought a 2 wheel electric scooter, so I too, could enjoy riding on the trails. Well, to relax my leg from spasticity occurring , knee jerking, I need to keep my knee stationary. But to the Park, they are saying it needs pedals. But pedaling a bicycle le will cause spasticity.
15/04/2018 21:50:11
topic: Personality

Hi everyone! I’m a newbie and so happy to part of this group. My mum is 62. She has had multiple tia’s and strokes which have resulted in vascular surgery on both sides of her neck. In recents weeks she has started being quite nasty, not wanting to bath or dress and eating sweets and cake like a deprived child. Her memory is quite poor now but she has changed completely. She’s not nice to her grandchildren anymore, she has always adored them. She had a brain scan last week as requested by her gp. I’m really worried about what they might find. Any info, ideas etc is much appreciated ??
04/04/2018 09:14:35
topic: Weight loss and diet

Hello does anyone have advice for me. My Dad had a stroke 10 years ago and has since put on at least 3 stone due to lack of movement. This has had a affect on his mobility. Does anyone have any eating plans / advice they could share. Many thanks
12/03/2018 08:01:08


Iam in the process of getting the rover 8, I am a 8yr stroke survivor. i am basically getting this for some freedom. and exercise. my question is . during my test ride. I had trouble holding left foot on the pedal. using the power grip pedals. still didn't hold it on. paralyzed on left side. anybody have any brilliant ideas on how to keep foot attached. without using ducktape? any advice would be appreciated

please help

I did not find the right solution from the internet.

Web video animation company

28/02/2018 04:56:45
topic: Research study into life after stroke and rehab

Hi there,

I am currently doing some education research around life after stroke and rehabilitation relating to a new rehab methodology being developed. I am looking for stroke survivors of all ages to either meet over video/audio chat (I am based in Sydney) or to fill out a 2 page questionnaire. The time commitment will be 30-40min. All answers are confidential and are strictly for non-commercial purposes. Please contact Oliver at oliverme@tpg.com.au.
10/02/2018 11:07:16
topic: Ischemic stroke

Peter O
Posts 111
Hi Geoff
I am 75 next month and had a very similar stroke 10 years ago. Whole right side was paralysed , had slurred speech eye sight in right eye and memory were all affected. Good news is I am completely recovered except memory is not as spontaneous, I could not tell you the street I lived in but that's no problem now.

05/02/2018 19:36:38
topic: Ischemic stroke

It is very important that you say how long ago the stroke occurred. The worst time is the first few months, but working to effect repairs should start immediately.
03/11/2017 08:23:45
topic: when is it "too late for rehab?"

Hello I am new to the boards but I was wondering how late is "too late to begin rehabilitating my affected side ( upper left extremity)?
I am about 8 month past my stroke. I can walk fine and I am back to work.Fortunately I am right handed. I have read many conflicting opinions on this question and cant seem to get a definitive answer. I am currently working with a traditional hand PT but progress is slow. Maybe I am being impatient. But I would love some real world examples on what methods people in this community have had. to summarize, i cant raise my left arm over my head without assistance from my non effected side. I cant make a fist or any other fine motor movement with my fingers. but I can slightly curl my fingers and in a relaxed position my hand stays relatively open. I would welcome suggestions on exercises or therapy recommendations.

For More Details:
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30/10/2017 20:37:53
topic: Advice about ill health retirement

I'm recovering from a recent stroke and one option is to seek ill health retirement. It seems if I am deemed incapable of performing my usual duties I could end up retiring but on full pension.
Has anyone been through the independent medical examinations etc that this would entail? I would be interested to learn of your experiences.
26/10/2017 13:35:46
topic: Recovery Video Series


This is a video series of a friend of mine who is recovering from a stroke as a musician. I found it really inspirational and I wanted to share it.


17/10/2017 17:15:26
topic: Life After TIA

Im 29years old and suffered a mini stroke at the start of the Month 2/10/17( i know not a full blown stroke which im counting my blessings for) ive been put on clopidogrel and simvastatin by the hospital and signed off from work by my doctor untill end of the month, ive had a mri, ct scan and awaiting a echocardiogram and 48hr ecg, i feel very tired and seem to only be able to be up and about on my feet for a certain amount of time before my head starts to feel funny sort of fuzzy and makes me feel not normal, i also feel very down and generally not my normal self, Is that a normal thing to be feeling after a TIA. I have a follow up appointment at the TIA clinic at the end of November but im wondering if i should see about getting signed off from work untill ive had that appointment, i work in a busy shop where im on my feet all day if i cant even manage to walk around a supermarket for half hour without feeling funny what hope have i got of running a shop. Ive also noticed that i cannot look at my phone for too long without it hurting my eyes and giving me a headache (i suffered total loss in left eye for 20mins when had the tia)
02/09/2017 15:18:01

ioana clonis
Emotional Experiences and Challenges People Face Following Right Hemisphere Stroke

Can you help us gaining a better understanding of emotional experiences and challenges people face following right hemisphere stroke?
My name is Ioana Clonis and this study is a part of my studies for the Doctorate in Counselling Psychology (DCPsych) at New School of Psychotherapy and Counselling in conjunction with Middlesex University. The research will explore people’s emotional experiences following a stroke in the right-hand side of the brain.

The right hemisphere of the brain is particularly important in the processing of emotion and damage in this area can result in changes to emotional awareness and behaviour.

To date there have been few studies exploring the emotional experience of stroke patients. This study will help us to understand the challenges they face and recommend appropriate therapies.

Being involved in this study will entail answering some background information and taking part in a one interview with myself lasting approx. 60-90 minutes.
Participants will be encouraged to discuss their experience of stroke, and to explore how do they experience, understand and communicate emotions. They will also be encouraged to explore how is it like for them to adjust to change in their emotional awareness and behaviour.

? Participants in this study will be selected on the following criteria:
? 1. Adults between 25 and 65 years of age
? 2. The occurrence of a stroke in the right-hand side of the brain
? 3. 6 months recovery time after the onset of stroke
? 4. Fluent in the English language

If you are interested in taking part in this study, please contact me on the number or email below
0845 5577752 or IC238@live.mdx.ac.uk.

Thank you very much in advance,
Ioana Clonis
28/08/2017 17:41:46
topic: Neurologist

Hi, I'm new on here hope I'm doing this right.
I had a TIA/stroke ??beginning of June this year right sided weakness that resolved within a couple of days. I was in hospital for 3 days all relivent tests and blood tests done everything came back normal or clear. I had very painful hands and fingers felt like electric shocks running through them very sore couldn't have anything touching them, that has worn off a little but my leftEye side is causing me concern I can't have any metal such as buckle off a belt or buttons on jeans touching my tummy on left side, can't feel water temperature on left side, even rain drops landing on my body causes me pain, can't put my hands under cold running water, it feels like there's a fire ball in my left calf. I've got an appointment for September to see neurologist I just wondered if anyone else has suffered these symptoms, I'm also registered blind I have no periviol view and this has been affected too. I'm not on any medication as all results were clear bit I'm hoping I am prescribed something to help me feel as if I'm getting back to normal.
Thankyou for any advice that's offered
26/08/2017 17:24:31
topic: Understanding my friends attempts to talk

Hi all,
I hope you can help. My friend had a stroke about 10 days ago and she's making quite a good come back considering how bad she was when she first went into hospital. At the moment she's shifting between perfect sentences to a seemingly meaningless jumble of words. We've already established that sometimes she's talking in metaphors to express herself, but another thing she has been doing is repeating lots of numbers. She was worried about her mortgage, which explained some of it, but we've explained it's being sorted out now. We did wonder if she was desperately trying to tell us her PIN number, or possibly odds of some race (she used to work in a betting shop). Another theory is that when she says "one, two, three, four" its phonetic and she means "want to" instead of "one two" (and then just carries on).

I was wondering if anyone else had experienced this repeating of numbers and how they could be translated?

Many thanks.
25/08/2017 02:35:00
topic: How to overcome hand problems after stroke?

Many stroke or other central nerve system injured patients are suffering from hand problems. In order to help patients overcome hand problems, XFT launched the H1 Hand Rehab System, the first wearable hand rehabilitation device that combines biofeedback sEMG, Neuromuscular Electrical Stimulation (NMES), EMG Triggered Stimulation (ETS), Power Assistant Stimulation (PAS) and integrated electrode, providing perfect user experience for medical personnel and patients. Know more about H1 from YouTube: https://www.youtube.com/watch?v=EkpYVQZ-IMk

Intended use of H1:
·Increase hand function
·Increase or maintain hand range of motion
·Reduce muscle spasms
·Retard muscle atrophy
·Reeducate muscles
·Increase blood circulation

Now, XFT provides you a FREE opportunity to use the H1. check the online free trial application here: http://www.xft-china.com/english/Products/H1_Hand_Rehab_System_XFT_2003E/2017/0710/194.html
06/08/2017 14:08:35
topic: Muscle Spasms

I was prescribed medication for my restless legs. I'm also on medication to help control the nerves firing.

Working out is tiring and muscles are not there yet. With more work comes more pain. Don't give up. Find the right concoction to help. Get with your neurologist.
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